Participants Needed for Research Study    Memorial University

Dear Fellow Canadians,

My name is Megan Cox, and I am a master’s student in the School of Human Kinetics and Recreation at Memorial University working under the supervision of Dr. Erin McGowan. As part of my degree requirements, I am conducting a research study exploring the physical activity levels, benefits and barriers, quality of life, and preferences for individuals experiencing lymphedema in Canada. With a secondary purpose of exploring the impact of COVID-19 on physical activity levels and lymphedema management.

To participate you need to be 19 years old or older, have been diagnosed with lymphedema, and be able to read and understand English.

If you decide to volunteer, you will be asked to complete this anonymous online survey which will take 40-60 minutes to complete. The survey will include sections on topics such as demographics (e.g., age, gender, income), lymphedema, cancer (if applicable), physical activity, benefits and barriers to physical activity, quality of life, and COVID-19.

Sample questions include:
Where is your lymphedema located?;

Does your lymphedema cause you pain?; What is your age?; and

“before COVID-19, I was more active than I am currently.”

You may skip any questions that you do not wish to answer. Participation in this study is not a requirement of the Lymphedema Association of Newfoundland and Labrador or any other Lymphedema groups or associations, other groups/organizations, or of any health care services/ treatments/practitioners that may distribute a survey invitation on our behalf. At the end of the survey,
participants will have the opportunity to enter a lottery prize draw for a chance to win one of 
three prize packages.

If you are interested in participating in this study, please click the link below for more detailed information and to participate.

https://mun.az1.qualtrics.com/jfe/form/SV_9HaVZbyzTLjgQtw

If you have any further questions about this study, please contact me by email at

mjc547@mun.ca or by phone at (709)-725-4154.

Thank you for considering participating in this study,

Megan Cox

The proposal for this research has been reviewed by the Interdisciplinary Committee on Ethics in Human Research and found to be in compliance with Memorial University’s ethics policy. If you have ethical concerns about the research, such as your rights as a participant, you may contact the Chairperson of the ICEHR at icehr.chair@mun.ca